At our last NICU follow-up clinic we also had a meeting with our prosthetic team. I call it a team because there were about five people meeting with us - the dr, his fellow, a resident, the owner of Limb Lab, and another Limb Lab consultant. Everyone wants to be part of Jaron's journey!
They saw immediately the issues with the prosthesis. It came too high up on Jaron's armpit so he couldn't even have the arm relaxed against his body. It was too long compared to his other arm and his shoulder was pushed up if he tried to weight bear on his left side. And no bend.
The owner of Limb Lab had ideas. So did everyone else. It was a giant swirl of conversation where people built off each other's thoughts to come up with something better.
Turns out what we have is prototype #1.
They took it to Limb Lab to make immediate adjustments that day. We stuck around to have Jaron try it on before they glued things in place, but he fell asleep before they could, so they eyeballed it and sent it home with us.
Prototype #2:
I can actually put it on him and walk away without worrying about him getting stuck. He doesn't seem to mind having it on.
It was a little short after they cut the arm and made a bend. They made it easy to take the foam pad off and put the hand back on, so I did. Now the height is practically perfect.
I put it on him in the high chair for snacks one afternoon and had him work for his food. He figured out that he needed to hold his arm down so the cup wouldn't move as he dug raisins out.
He had so much fun, that when I took the top off so he could easily grab them out, he put the top back on. Then after he was full, he took the raisins out and put them back in again. 😂
One thing I don't love about this model is that it sometimes works its way off his flipper. As in it comes off without me taking it off. I wonder if it's too short now. I need to take a picture of it in the act and send it to the professionals. This is prototype #2- they plan to make more tweaks before making the final model and billing insurance.
































